Have my meds affected my kids?

seroquelOn Tuesday night, my kids raced to the front door to greet a special visitor.  Her name was Ameka and rather than dinner, she had come to spend two hours interviewing the kids and I.  By ‘interview’ I don’t mean the journalistic kind… rather, she was there as part of a new research project into the effects on children aged 1-5 of taking anti-psychotic medication during pregnancy.

I’ve shared before about how – after a horrific experience following the birth of my first baby – I decided to go on Seroquel in the latter stages of my subsequent two pregnancies.  This wasn’t an easy decision. Before I fell pregnant the second time I went to see  one of the world’s leading specialists in women’s mental health – trying to find out more information about possible effects of anti-psychotic medication on unborn babies.

Unfortunately, at that time (five years ago) there wasn’t much research to reassure me that it was safe or not. In fact, the specialist I saw was embarking on a world-first study into the effects of Anti-Psychotic Medication on babies.  At the time, they had a database of 25 babies (all healthy!) whose development they were tracking from birth to 12 months.

Knowing how desperately needed this research was, I readily agreed to participate in the study.  The phone calls and visits continued until my each child turned one.

I must admit, I was a little disappointed when our time in the study ended. as they learn to walk, talk and really start showing their true personality. Surely studying babies only until they turned one wasn’t giving the researchers the full picture?

So I was pleased to receive a phone call last month, letting me know that Ameka, a medical student, was joining the team and continuing the research up until the age of five –  as part of her thesis.  I readily agreed for her to interview my younger two kids (now aged three and five) and I.

So that’s how we found ourselves last night, watching my youngest son (a real clown!) hopping around the room on one foot, building towers out of blocks, drawing different shapes and doing puzzles.  Watching his younger siblings pass their tests with flying colours, my high achieving oldest son hovered by… confused as to why this special guest wasn’t interested in testing him.

As she left, I couldn’t help but ask Ameka, “So… do the kids seem ok to you?”  I’ve never had any cause to doubt that they are perfectly ok. But somehow, having a medical professional agree that the medication hasn’t hampered their development at all was… reassuring.

I might have bipolar disorder.  But like any mum out there, I want the best for my children.  My prayer is that years down the track, when  other women with bipolar are preparing for pregnancy, ground-breaking research like this will mean they can be assured that looking after their own health will not harm the ones they love best.

 

 

 

Advertisements

Taking anti-psychotics during pregnancy: is it safe?

SONY DSC

Women with bipolar disorder are no different from other women around the world.  Being diagnosed with bipolar doesn’t stop the desire to have a baby, or add to our family.
In the lead up to their pregnancy, most women with Bipolar Disorder are advised to go off all medication.
Yet, what about those of us at risk of relapse if we stop taking our prescribed antipsychotic medication can be detrimental to our health.  Or for those whose pregnancy was unplanned, and may have already been taking antipsychotic medication before they discover they are pregnant?
Are we doomed to rest of our pregnancy worrying about the impact on our unborn baby?

The National Register of Anti-Psychotic Medications in Pregnancy (NRAMP) is an observational, nationwide study based in Melbourne, Australia, that is aiming to provide a better understanding of antipsychotic medication use during pregnancy, birth and the first year of a baby’s life.

This world-first, innovative study will give women taking antipsychotic medications, and the medical profession, with the information we need to make informed decisions before and during pregnancy.

I participated in this study during my second and third pregnancies.  The outcome?  Two very healthy babies and no signs of the mental illness I endured after the birth of my first baby.

Here’s the lowdown on this great research project:

What does NRAMP aim to achieve?

  • Provide a better understanding of antipsychotic medication use during pregnancy, birth and for the first year of the baby’s life;
  • Allow for the development of evidence-based guidelines for the best use and effect of antipsychotic medication during pregnancy, birth and the postnatal phase;
  • Assist healthcare professionals, and women with mental illness, to make informed decisions about appropriate treatment options, and encourage safer outcomes for both mother and baby, during pregnancy, birth and the postnatal phase;
  • Enhance our knowledge regarding the care of women with mental illness during pregnancy, birth and the postnatal phase.

What’s involved in the study?

Through regular phone calls and research, NRAMP follows the journey of mother and baby during pregnancy, delivery and for the first year of the baby’s life.  The study is designed to collect and record information on maternal and neonatal health and wellbeing during this time frame.  It is not designed to provide treatment recommendations, make mental health diagnoses or pass judgment on any individual.

Who can participate in NRAMP?

  • Women who are taking, or have taken, antipsychotic medication during pregnancy;
  • Women who are pregnant or who have had a baby in the last 12 months;
  • Women who reside in Australia;
  • Women who are able to provide informed consent.

How can I join NRAMP?

Referral by your clinicians: Healthcare professionals can refer potential participants to NRAMP. Clinicians are asked to briefly discuss the study with appropriate patients, and to ask their consent to pass on contact details to NRAMP research personnel, who will then contact the potential participant to discuss participation in the study.

By self-referral: Women who are interested in participating in the study can contact the NRAMP researcher personnel directly.

Contact details:

Ms Heather Gilbert, Senior Research Nurse

Phone + 61 3 9076 6591